Faculty of Health Sciences - Disability Initiative
The University of Sydney
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Publications in the past five years

Peer Reviewed Journals

 

Current

Balandin, S., Llewellyn, G., Dew, A., Ballin, L. (accepted December, 2005). We couldn’t function without volunteers: Volunteering with a disability, the perspective of not-for-profit organisations. International Journal of Rehabilitation Research.

Balandin, S., Llewellyn, G., Dew, A., Ballin, L., Schneider, J. (2006). Older disabled workers’ perceptions of volunteering. Disability and Society, 21(7) December Issue.

Balandin, S., Llewellyn, G., Dew, A., Ballin, L. (submitted February, 2006) People with Disabilities as Volunteers: What Volunteer Coordinators Think. Australian Journal of Social Issues.

Poulos, A., Balandin, S., Llewellyn, G., Dew, A. (2006). Women with cerebral palsy and breast screening by mammography. Archives of Physical Medicine and Rehabilitation, 87(2), 304-307.

Togher, L., Balandin, S., Young, K., Given, F., & Canty, M. (in press, accepted March 06) Communication access the legal system. Topics in Language Disorders.

Balandin, S., Hemsley, B., Sigafoos, J., Green, V. (in press, accepted March 2006). Communicating with Nurses: The Experiences of 10 Adults with Cerebral Palsy and Complex Communication Needs. Applied Nursing Research.

Hemsley, B., Balandin, S., & Togher, L. (in press, accepted September 05). Older unpaid carers' experiences supporting adults with cerebral palsy and complex communication needs in hospital. Journal of Developmental and Physical Disabilities.

Balandin, S., Berg, N., & Waller, A. (2006). Assessing the loneliness of older people with cerebral palsy. Disability and Rehabilitation, 28, 469-479.

Dew, A., Balandin, S., Llewellyn, G., Wedgwood, N. (submitted June, 2006). Changes in adult sibling experiences over the life course: “The ultimate way I can support Mum”. Mental Retardation.

Griffin, T., & Dew, A. (submitted April, 2006). Parents’ engagement an institutional closure: Perceptions and outcomes. Journal of Intellectual & Developmental Disability.

Dew, A., Llewellyn, G., Gorman, J. (accepted December, 2005). Having the time of my life: an exploratory study of women with intellectual disability growing older. Health Care for Women International.

McConnell, D., & Llewellyn, G. (in press). Social inequality, the deviant parent and child protection practice. Australian Journal of Social Issues.

McConnell, D., Llewellyn, G., & Ferronato, L. (in press). Context-contingent decision-making in child protection practice. International Journal of Social Welfare Law.

Mayes, R., Llewellyn, G., McConnell, D. (in press, accepted April 2006). Misconception: The experience of pregnancy for women with intellectual disabilities. Scandinavian Journal of Disability Research.

Sharp, N.L., Bye, R.A., Llewellyn, G.M., & Cusick, A. (accepted 12/10/05). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation.

McCarthy, L.R. (accepted, Dec 2006) Creating Images: Constructing Women Doctors in Twentieth-Century Australia. Invited article. Health & History special issue on Medicine at the Movies.

Erickson, K.A., Clendon, S., Cunningham, J.W., Spadorcia, S., Koppenhaver, D., Sturm, J., & Yoder, D.E. (2006) Automatic word recognition: The reliability and validity of a universally-accessible assessment task. Manuscript submitted for publication.

2005
Trembath, D., Balandin, S. & Rossi, C. (2005). Cross-Cultural Practice in AAC and Autism. Journal of Intellectual and Developmental Disability, 30, 240-242.

Bigby, C., & Balandin, S. (2005). Another minority group: use of aged care day programs and community leisure services by older people with lifelong disability. Australasian Journal on Ageing, 24(1), 14-18.

Rossi, C., Balandin, S. (2005). Bilingualism, culture and AAC. ACQuiring knowledge in speech, language and hearing. 7, 27-29.

Sen, R., Balandin, S., Lincoln, M. (2005). Cross-Cultural Collaboration: A Successful Example? ACQuiring knowledge in speech, language and hearing. 7, 19-21.

Trembath, D., Wales, S. & Balandin S. (2005) Challenges for Undergraduate Speech Pathologists Undertaking Cross-Cultural Clinical Placements. International Journal of Language and Communication Disorders 40, 86-98.

Llewellyn, G., McConnell, D., Thompson, K. & Whybrow, S. (2005). Out-of-home placement of school-age children with disabilities. Journal of Applied Research in Intellectual Disability, 18, 1-6.

Poulos, A. & Llewellyn, G. (2005). Mammography discomfort: a holistic perspective derived from women’s experiences. Radiography, 11(1), 17-25.

Moriera, C., Svoboda, K., Poulos, A., Taylor, R., Page, A. & Rickard,M. (2005) Comparison of the validity and reliability of two image classification systems for the assessment of mammogram quality Journal of Medical Screening 12:38-42.

McCarthy, L.R. (2005) All this fuss about a trivial incident? Women, hospitals and medical work in New South Wales, 1900-1920. Women’s History Review, 14(2), 267-85.

Clendon, S.A., Gillon, G.T., & Yoder, D.E. (2005). The efficacy of phoneme awareness intervention for children with severe speech and physical impairments. International Journal of Disability, Development, and Education, 52(1), 7-31.

Erickson, K.A., & Clendon, S.A. (2005). Responding to individual needs: Promoting the literacy development of students who use AAC. Perspectives on Augmentative and Alternative Communication [The newsletter of The American Speech-Language-Hearing Association’s Special Interest Division for Augmentative and Alternative Communication], 14(2), 11-16.

Erickson, K., Clendon, S., Abraham, L., Poston, V., & Van de Carr, H. (2005). Toward positive literacy outcomes for students with significant developmental disabilities. Assistive Technology Outcomes and Benefits, 2(1), 45-54.

2004
Balandin, S. (2004). Guest editorial. AAC: Augmentative and Alternative Communication, 20(4).

Llewellyn, G., Balandin, S., Dew, A., & McConnell, D. (2004) Promoting healthy, productive ageing: plan early, plan well. Journal of Intellectual and Developmental Disability 29, 366–369.

Hemsley, B. & Balandin, S. (2004). Without AAC: The stories of unpaid carers of adults with cerebral palsy and complex communication needs in hospital. Augmentative and Alternative Communication, 20 (243–258).

Dew, A., Llewellyn, G., & Balandin, S. (2004). Post-parental care: A new generation of sibling carers. Journal of Intellectual & Developmental Disability, 29, 176–179

Bigby, C., Balandin, S., Fyffe, C. McCubbery, J., & Gordon, M. (2004). Retirement or just a change of pace: An Australian national survey of disability day services used by older people with disabilities. Journal of Intellectual and Developmental Disability, 29, 239–254.

Berg, N. & Balandin, S. (2004). Loneliness and older adults with cerebral palsy. ACQuiring knowledge in speech, language and hearing, 6, 46–49

Cream, A., Packman, A. & Llewellyn, G. (2004). The playground rocker: A metaphor for communication after treatment for adults who stutter. Advances in Speech-Language Pathology, 6(3), 182-187.

Llewellyn, G., Gething, L., Kendig, H. & Cant, R. (2004). Older parent caregivers’ engagement with the service system. American Journal on Mental Retardation, 109(5), 379-396.

Poulos, A. (2004) How does it feel? The Radiographer December 51:129-31.

Poulos, A. & McLean, D. (2004) The Application of Breast compression in Mammography: A new perspective Radiography 10: 131-7.

Adams, E., Adamson, B. & Poulos, A. (2004) An Insight into the Student’s Perspective of a Nuclear Medicine Clinical program The Radiographer December 51: 111-5 December.

Sturm, J.M., & Clendon, S.A. (2004). AAC, language, and literacy: Fostering the relationship. Topics in Language Disorders, 24, 59-74.

2003
Balandin, S., & Lincoln, M. (2003). Swallowing and communication: Are we eating our words. Advances in Speech Language Pathology, 5, 119–124.

Hemsley, B., & Balandin, S. (2003). Disability, dysphagia, and complex communication needs: Making room for communication in ethical decisions about dysphagia. Advances in Speech Language Pathology, 5, 125–130.

Balandin, S. (2003). AAC: Functional communication – not a last resort. ACQuiring knowledge in speech, language and hearing, 5, 10–13.

Balandin, S. (2003). Happily ever after: communicating results to participants in research. Journal of Intellectual and Developmental Disability, 28, 85–87.

Hemsley, B., & Balandin, S. (2003). Working with people who have cerebral palsy: A speech pathology perspective. ACQuiring knowledge in speech, language and hearing, 5, 25–27.

Cream, A., Onslow, M., Packman, A. & Llewellyn, G. (2003). Protection from harm: The experience of adults after therapy with prolonged speech. International Journal of Language and Communication Disorders, 38(4), 379-395.

Llewellyn, G., McConnell, D. & Mayes, R. (2003). Health of mothers with intellectual limitations. Australian and New Zealand Journal of Public Health, 27(1), 17-19.

Llewellyn, G., McConnell, D. & Ferronato, L. (2003). Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse and Neglect, 27, 235-251.

Llewellyn, G., McConnell, D., Honey, A., Mayes, R., & Russo, D. (2003). Promoting health and home safety for children of parents with intellectual disability: a randomized controlled trial. Research in Developmental Disabilities, 24(6), 405-431.

McConnell, D., Llewellyn, G., Mayes, R., Russo, D. & Honey, A. (2003). Developmental profiles of children born to mothers with intellectual disability. Journal of Intellectual and Developmental Disability, 28(2), 122-134.

Galetta, S., Joel, N., Maguire, K., Weaver, K., & Poulos, A. (2003) Anxiety in Mammography: Mammographers’ and Clients’ Perspectives The Radiographer Vol.50 No. 3 141-1450.

Poulos, A., McLean, D., Rickard, M D. & Heard, R. (2003) Breast Compression in Mammography: How much is enough? Australasian Radiology Vol 47, 121-126.

McCarthy, L.R. (2003) Idealtists or pragmatists? Progressives and separatists among Australian medical women, 1900-1940. Social History of Medicine, 16(2), 263-82.

McCarthy, L.R. (2003). Surveying attitudes and charting the future. Australian Cultural History, 22, 31-42.

Clendon, S., Flynn, M.C., & Coombes, T. (2003). Facilitating speech and language development in children with cochlear implants using computer technology. Cochlear Implants International, 4(3), 119-136.

2002
Balandin, S. (2002). Communication and older people with lifelong disability: A role for speech pathologists? Advances in Speech Language Pathology, 4 109–118.

Balandin, S. (2002). Communication and older people with lifelong disability: The new research agenda. Advances in Speech Language Pathology, 4, 139–142.

Campbell, L., Balandin, S., & Togher, L. (2002). Augmentative and Alternative communication used by people with traumatic brain injury: A review. Advances in Speech Language Pathology, 4, 89–94.

Llewellyn, G., McConnell, D., Russo, D., Mayes, R. & Honey, A. (2002). Home based programs for parents with learning difficulties: Lessons from practice. Journal of Applied Research in
Intellectual Disabilities, 15
(4), 341-353.

McConnell, D. & Llewellyn, G. (2002). Stereotypes, parents with intellectual disability and child protection. Journal of Social Welfare and Family Law, 24(3), 1-21.

Llewellyn, G., Thompson, K. & Fante, M. (2002). Inclusion in early childhood services: ongoing challenges. Australian Journal of Early Childhood, 27(3), 18-23.

Bowman, J. & Llewellyn, G. (2002). Clinical outcomes research from the occupational therapist's perspective. Occupational Therapy International, 9(2), 145-166.

McConnell, D., Llewellyn, G. & Ferronato, L. (2002). Disability and decision-making in Australian care proceedings. International Journal of Law, Policy and the Family, 16, 270-299.

Llewellyn, G. & McConnell, D. (2002). Mothers with learning difficulties and their support networks. Journal of Intellectual Disability Research, 46(1), 17-34.

2001
Balandin, S., Hemsley, B., Sigafoos, J., Green, V. A., Forbes, R., Taylor, C., & Parmenter, T. (2001). Communicating with Nurses: The Experiences of 10 Individuals with an Acquired Severe Communication Impairment. Journal of Brain Impairment 2, 109–118.

Hemsley, B., Sigafoos, J., Balandin, S., Forbes, R., Taylor, C., Green, V. A., & Parmenter, T. (2001). Nursing the patient with severe communication impairment. Journal of Advanced Nursing, 35(6), 827–835.

Iacono, T., Cupples, L., Balandin, S., & Cassidy, S. (2001). Access to web-based reading materials for individuals with disability. ACQuiring knowledge in speech, language and hearing, 3, 117–119.

Balandin, S., & Johnson, H. (2001). Semantic organisation of adults with cerebral palsy. Advances in Speech-Language Pathology, 3(1), 1–12.

Iacono, T., Balandin, S., & Cupples, L. (2001). Focus group discussions of literacy assessment and world wide web-based reading intervention. Augmentative and Alternative Communication, 17(1), 27–36.

Balandin, S. & Morgan, J. (2001). Preparing for the future: Ageing and AAC. Augmentative and Alternative Communication, 17, 99–108.

McConnell, D. & Llewellyn, G. (2000). Disability and discrimination in statutory child protection proceedings. Disability and Society, 15(6), 883-895.

Shrestha, S. & Poulos, A. (2001) The Effect of Verbal information on the experience of mammography Radiography 7, 271-277.

McCarthy, L.R. (2001). Women doctors and a sense of place. Public History Review, 9, 45-60.

Books and Book Chapters

 

Current

Balandin, S. (in press). Communication: expressing choices, needs and aspirations. In C. Bigby, C. Fyffe & E. Ozanne (Eds.), Issues in Case Management Practice for People with Intellectual Disabilities: A Handbook for Practitioners. London: Jessica Kingsley.

Togher, L. Balandin, S., &Young, K (2006). Improving access to the justice system for people with communication difficulties. Sydney: The University of Sydney. ISBN: 1 86487 818 5

2005
Balandin, S., Togher, L., Grant, S., Bolt, R., & Kessler, T. (2005) . Ageing and communication in Indigenous health. Sydney: The University of Sydney ISBN 1 86 487 726X

Balandin, S. (2005). Ageing and AAC: Start early, age well! In J.Boenisch (Ed.), Leben im Dialog (pp. 466-478). Karlsruhe: von Loeper Fachbuch.

Balandin, S., & Sweep, A. (2005). Functional communication in the classroom. In P. Foreman (Ed.), Inclusion in Action (pp. 363-403). Southbank: Thompson.

Balandin, S. (2005). Language and augmentative and alternative communication. In V. Reed (Ed.), An introduction to children with language disorders (pp. 384-403). New York: Allyn and Bacon.

Llewellyn, G. & McConnell, D. (2005). “You have to prove yourself all the time”. In G. Grant, P. Goward, M. Richardson & P. Ramcharan (Eds.), Learning Disability. A life cycle approach to valuing people (pp.441-467). Berkshire: Open University Press.

McCarthy, L. (2005). The History of Nursing and Medicine. In M. Spongberg, B. Caine & A. Curthoys (Eds.). Companion to Women’s Historical Writing. Hampshire, UK: Palgrave Macmillan.

2004
Griffin, T., & Balandin, S. (2004). Ethical research involving people with intellectual disability. In E. Emerson & C. Hatton & T. Thompson & T. R. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 61-82). Milton, QLD: John Wiley & Sons Ltd.

Bigby, C., & Balandin, S. (2004). Issues in Researching the Aging of People with Intellectual Disability. In E. Emerson & C. Hatton & T. Thompson & T. R. Parmenter (Eds.), The international handbook of applied research in intellectual disabilities (pp. 221-236). Milton, QLD: John Wiley & Sons Ltd.

Llewellyn, G, Thompson K. & Whybrow, S. (2004). Activism as a mothering occupation. In S. Esdaile & J. Olsen (Eds.), Mothering occupations: Challenge, agency and participation (pp.282-305). Philadelphia: F.A. Davis.

Llewellyn, G. & McConnell, D. (2004). Mothering capacity and social milieu. In S.A. Esdaile and J.A. Olsen (Eds.), Mothering Occupations: Challenge, agency, and participation (pp.174-192). Philadelphia: F.A. Davis.

Gillon, G., Clendon S., Cupples, L., Flynn, M., Iacono, T., Schmidtkie, T., Yoder, D., & Young, A. (2004). Phonological awareness development in children with physical, sensory, or intellectual impairment. In G. Gillon (Ed.). Phonological awareness: From research to practice (pp. 183-224). New York: Guilford Press.

2003
Llewellyn, G. (2003). Family care decision-making in later life: the future is now! In M. Nolan, U. Lundh, G. Grant & J. Keady (Eds.), Partnerships in family care: Understanding the caregiver career (pp.145-182). Maidenhead: Open University Press.

Llewellyn, G., Sullivan, G. and Minichiello, V. (2003) (2nd ed.). Sampling in qualitative research. In V. Minichiello, G. Sullivan, K. Greenwood & R Axford (Eds.). Handbook of Research Methods for Nursing and Health Science (pp. 210-241). Melbourne: Pearson Education Australia.

2001
Balandin, S., & Barnes-Hughes, T. (2001). Supporting augmentative and alternative communication. In Helen Cockerill & L. Carroll-Few (Eds.), Communicating without speech: Practical augmentative and alternative communication (pp. 137-152). London: MacKeith Press.

Balandin, S. (2001). Growing older with cerebral palsy and augmentative and alternative communication. In S. von Tetzchner & J. Clibbens (Eds.), Understanding the theoretical and methodological bases of augmentative and alternative communication (pp. 182-191).
Toronto: International Society for Augmentative and Alternative Communication

Hemsley, B., & Balandin, S. (2001). Ageing, disability, dysphagia and severe communication impairment. In S. von Tetzchner & J. Clibbens (Eds.), Understanding the theoretical and methodological bases of augmentative and alternative communication (pp. 192-199). Toronto: International Society for Augmentative and Alternative Communication.

Balandin, S., & Chapman, R. (2001). Ageing with a disability at home: An Australian perspective. In W. Preiser & E. Ostroff (Eds.), Universal Design Handbook (pp. 38.31-38.16). New York: McGraw-Hill.